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Thursday, June 21, 2012

6/21 Update

The first run of weekday nights at two hospitals is running down, and both Austin and Malia are doing well.  We started our visits with Malia, where she had some kangaroo time with Daddy.  We were happy to see that they took her back off of her CPAP after the infection scare a couple of days ago, and she's much happier without the bulky apparatus on her face.

What a difference a day makes!  This is Malia the day before at 33w2d, w/ CPAP

And this is her without the CPAP the next day, Malia and Daddy had a good nap together
Malia is much happier with just a nasal cannula now
At 3 lb., 10 oz., she's looking good at 33w3d
 Malia has resumed feedings and is slowly being increased every day.  She's taking more than her brother now, which should give her an opportunity to catch up.  She's up in weight quite a bit, but hadn't pooped in 3 days, so we were thrilled to hear she had an "extra large" one tonight... Ahhh, the simple pleasures in parenthood!

Austin is doing very well too in his new abode at CHOC, and they've even taken him off of his nasal cannula altogether, which means they can switch him to an NG feeding tube, which looks a lot better overall.  He still hasn't passed his Barium, despite wincing and wiggling and looking like he was trying to work it out.  Poor little guy!  We're not sure what they plan to do for him, but they will probably irrigate and try to get it out of him, because they can't do the biopsy until he clears it out.  They removed his scalp IV because his PICC line is taking its place, and it looks much better!
We'll see where they go with this bowel thing.  At least his belly isn't as distended, and they're watching him closely to make sure he doesn't walk himself up to an infection like last time.

Austin, 33w2d
Still has a funny face, we love it!

Perhaps our favorite Austin pic yet, smiley boy!
 We bought cribs today for Austin and Malia, and dare I say, the reality is setting in of their imminent arrival at home at some point soon.  It feels good to think all of this is temporary!


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